Born on August 10, 2020, Jamison Jett Rayner Briton is adored by his family, mum Reannon, dad Josh and his six brothers and sisters aged between 12 and one.

He was only two weeks old when diagnosed with a stage four medulloblastoma tumour, which is attached to his frontal lobe, and he is still too young for an MRI or chemotherapy.

"We think he came out early for a reason," said grandmother Lauren Davies, from Wingham.

"He was three weeks premmie and I guess he knew he needed to get as much loving in as he could."

Lauren describes him as a placid boy who loves big cuddles and being wrapped.

"He's like an old soul," she said.

"He looks like an old man. I call him Benjamin Button. He's got a wrinkly forehead and looks like he's got the weight of the world on his shoulders but he's so placid.

"He's a precious boy. His brothers and sisters all love him to death.

"My heart is absolutely shattered for Jamison, Reannon, Josh and the kids."

Lauren said when Jamison was born his fontanelle wasn't as big as it should have been and some of the bones in his skull were fused, leading doctors to order an x-ray.

They were giving the all clear, but two weeks later the paediatrician rang and said there needed to be more investigation because a shadow had been found on the x-ray.

"They said 'we need an ultrasound, we think we found something, but it's just a precaution'.

"Jamison had the ultrasound on the Friday and we weren't meant to get results until midweek.

"The head neurologist from the oncology department at Westmead rang Reannon on the Saturday and said it's not good."

She said while they want to do an MRI, they're supposed to wait until six weeks from his due date, so there is still five weeks to wait.

"The MRI is to see if there is any other cancer in his body. They don't know if the brain tumour is the primary or secondary cancer. We won't know until then.

"If he gets bad symptoms, they'll press ahead if need be."

Chemotherapy isn't an option until he is six months old.

"That's if he makes it to six months. They're all big ifs."

Fortunately, Jamison has been approved for a cannabis oil trial, one of six babies in Australia under six months undertaking the trial.

His mum Reannon will take the oil and then Jamison will be breastfed. "It's the only way he can get it," said Lauren.

The oil doesn't come without side effects but Lauren said Reannon wants to do anything and everything she can.

"They're just trying to do everything.

"It's hard to fathom how any parent could go through this. It's hard enough raising babies and you know there's nothing you can do for the little man.

"She had a perfect pregnancy. She didn't drink and has never smoked. She did all the right things.

"We're shattered as a family."

Lauren said neither Reannon or Josh are sleeping well and taking it in turns to sleep.

"Josh sits up for four hours and she'll wake up and then he'll have a sleep.

"They want to make sure he's breathing. There's no guarantees.

"They've purchased an owlet sock, which you put on the foot and it monitors breathing and heart rate."

Josh works as a tyre fitter fulltime and has had to go back to work.

"You'd love to have every day off but he has to provide for the kids.

"Reannon looks after all the kids. There's seven of them. They've got a full house. Jamison was always the last."

Fundraising campaigns are underway to support the family.

Lauren's best friend of 34 years Alisa Holbert has created a Go Fund Me page at: https://www.gofundme.com/f/creating-memories-for-jamison

Meanwhile, lifestyle and inspirational speaker Jeffrey Morgan has also set up a fundraiser at: https://www.facebook.com/donate/798523080921526/?fundraiser_source=external_url

People have been very generous, Lauren said.

One friend Sharon from Ambiance Day Spa had gone so far as to donate half a day's earnings.

"What we're trying to do is raise money to pay for expenses to travel to Sydney (for medical appointments etc)," said Lauren.

"Reannon and Josh are also trying to concentrate on creating a lifetime of memories with him. Zoo trips, family holidays and also make it not as upsetting for his brothers and sisters.

"Our fingers are crossed he can make it to six months.

"Where the tumour is, it has attached to his frontal lobe and is inoperable.

"If they were to operate, the chances of paralysis or death far outweigh trying to get rid of it.

"We're all in a big haze of one step at a time. Not sort of looking at six months but making every moment count. It's all we can do.

"He's here today and if he's here tomorrow, it's a bonus."

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