FSHD sufferer John Chick of Taree joins the NSW Disability Advocacy Alliance #standbyme fight

By Ainslee Dennis
May 22 2019 - 4:00am
John Chick is living with incurable facioscapulohumeral muscular dystrophy (FSHD) and says "I'm losing strength in my arms and my legs, but can still hold myself up with my legs with a walking stick. It's going downhill all the time." He sought help from NSW Disability Advocacy in Taree when his National Disability Insurance Scheme application was rejected. Photo: Scott Calvin.
John Chick is living with incurable facioscapulohumeral muscular dystrophy (FSHD) and says "I'm losing strength in my arms and my legs, but can still hold myself up with my legs with a walking stick. It's going downhill all the time." He sought help from NSW Disability Advocacy in Taree when his National Disability Insurance Scheme application was rejected. Photo: Scott Calvin.

John Chick is a fighter. Daily he fights the irreversible weakening and wasting of his muscles caused by facioscapulohumeral muscular dystrophy (FSHD). The rare disease defines how he must live but not who he is, and the 60-year-old is joining the fight to retain disability advocacy services in Taree.

Subscribe now for unlimited access.

$0/

(min cost $0)

or signup to continue reading

See subscription options

Get the latest Taree news in your inbox

Sign up for our newsletter to stay up to date.

We care about the protection of your data. Read our Privacy Policy.